I have been dealing with Little Miss E's mystery smallness for her whole ten months of life now. I have fought endlessly for her to get medical attention and get a diagnoses that will enable us to get weight on her and have come up with nothing. After we got home from the hospital in LA, we started having a nurse that comes to visit twice a week and record weight gain and loss and monitor what we are doing that works and doesn't. Recently, I have even been able to get her seen by a civilian doctor in pediatrics that saw her as a newborn and got her through her infection at ten days old. About two and half weeks ago we went in and we had just started adding rice cereal to all of her bottles and she had her first significant weight gain in months and he was all happy with that. He told us to come back in two weeks to see how things were coming along. Well, when I brought her in, the weight had stopped again and she was still the same weight as she was the two weeks earlier, if not an ounce less. I went in knowing this because the visiting nurse had just weighed her the day before and told me the weight and that she was personally concerned and wanted to know how the dr. visit went.
When her doctor came in, I told him that her weight hadn't changed and he started grilling me about all kinds of things. He questioned how many people were in our family and the ages of our kids. He then questioned me about their health and implied that they had issues also, which I corrected because they eat like there is no tomorrow. He asked me if my husband spends much time with her and if he ever feeds her and if he
knows how to feed her. I told him we both know exactly how to feed our child and that he is very good with her and taking care of her. He then says to me, "Well, something is wrong!" And I agreed immediately but he cut me off by continuing that our daughter's problem was D and I not being in tune enough with her emotionally for her to want to eat for us! I told him that I had spent a whole week at UCLA hospital and that the first two and a half days nothing was done with her and they just recorded every move I made with her and observed me. I told him that after watching me they were so convinced I was doing everything I could that they didn't even speak to a case worker and they put the NG tube in her nose to make her eat. I have tons of documents showing how hard I have been fighting to get her seen and helped and that I have even had to go through medical professionals implying I am overreacting to my child's size.
The doctor didn't even acknowledge my words and just kepting clicking away at his computer until he was done and just told me he was done and that I could leave now. He told me he wanted to send her up to Loma Linda hospital to see Behavioral Pediatrics and a different GI doctor and dismissed me by saying someone would call me and walked off. It was surreal and unthinkable to me that that had just happened. I was crushed and I just got her dressed after he didn't even look at her and checked out and left.
I called my husband and told him what had just happened and he was speachless. I drove home and did my normal thing in an almost fog until D ran to the store with the older two kids while E was asleep. I had a monster of a cold and wasn't feeling well so I just sat on the couch and finally broke down and cried. I prayed very hard then and asked Heavenly Father to do something to let me know that He was around and that I wasn't a horrible mother. Shortly after, D came home with flowers for me and within an hour of that, two of my friends just showed up at my door feeling concerned for me without knowing what was going on. Later that evening, our Home Teachers came over and I asked for a blessing and they were more than willing. In my blessing, I was told that God knew I was doing everything in my abilities and that he was more than aware of our situation. He then told me that I know myself that I am doing everything I can for her. He told me that understanding people would enter our situation in her care. There were other parts, but these ones pertain to this blog.
It helped to know that things were going to be okay. D is a guy and guys act when these things happen and that is exactly what D did. D went straight to our insurance and told them what happened and they encouraged him to make a discrepancy because they take these things very seriously. They also had our doctor call us at home since she is our primary care physician and not the pediatrician and is military. She was really good to me and we discussed what we should do and I decided to go through with what the pediatrician was saying just to rule it out and have that out of the way but to do it through the military instead of through him. Plus, I looked into Behavioral Pediatrics and some of the clinics actually have feeding clinics which could be huge for us even if we have to go through the trauma of them investigating us as parents to make sure she is emotionally and physically looked after. I have nothing to hide and just want help and for someone to actually know what is going on with her. I can't imagine ever having real answers at this point, but just someone coming up with an answer of any kind is more than I have now.
I went through the last few months waiting for someone to make accusations and now that it has finally happened, we can just deal with it and move forward. I love these children more than I can express and give them my heart and soul and attention. I nurture them and I know all these things just like God told me I do.