
We went in to see the audiologist today and finally have some insight into why E is not developing in speech. When the doctor looked in her ears, they were completely filled with wax that was hard instead of soft like it is meant to be. Then when she put in the little tester thing in her ear, she did get some readings that made her think that there is either fluid built up in her ear or the canal is shut completely and causing pressure in her middle ear. Then when the hearing portion was run to the extent we can test before the wax is removed, her hearing was definitely impaired. She was hearing at about the level of someone with earplugs in their ears instead of how a normal person hears (they called it a 1 mile radius). So, in the picture I attached, there is the red section and those are the areas that are suspected to have the most trouble right now. The outer ear is clogged with wax because E is not producing an oil that is supposed to be produced to soften the wax, so it is instead hard and stuck and building up constantly and blocking her eardrum. Then on the middle ear (Eustation Tube), there is either fluid or it is closed from her sinus problems and causing a pressure build-up and issues there. It appeared her left ear is worse than her right.
Our plan of attack from here is that we are first going to do multiple eardrops and water flushes a day for the next two weeks to see if we can make any improvement on getting the wax out. If that doesn't work, she will be scheduled to see an ENT doctor who will surgically remove the wax and E will have to go under for that. Once that is done, a thorough hearing test will be able to be done and after that, there will be a brainstem test done while she is asleep to see if the nerves in her inner ear and brainstem are working correctly. So, we are in for some exciting times trying to do the eardrops twice to four times a day with a wiggly-almost-15-month-old. Fun times. At least we now have answers and a direction to go in on that end of things. The doctor explained to me that whatever condition it is that makes her so small is probably what has caused her the inability to make her oils for her ears. It stinks, but it is something we can do something about and I don't feel helpless.
Yesterday we went to the hospital lab and they drew something like six viles of blood from her because her pediatrician is starting to look into how E's immune system is working. It is a relief for a doctor to be actively seeking answers instead of just me. Aside from the lab work, we are waiting on a referral to get her in for what is called a cinefloroscopy and she has an appointment with her GI specialist. All this BEFORE I deliver our baby boy and that is only six weeks from now! Busy, busy. I guess I like it that way. Please send prayers our way that the eardrops work and E can avoid surgery.









